Another week GONE!

Just another day at the office.  My son had my car again.  I just hopes he looks after it and doesn’t treat it like he does his own.  That is why his is broken.  He dropped me off to work.  Usual day, just the challenges change slightly.  Thankfully my son turned up at finish time and gave me a lift home.  Uneventful evening, a quiet night, I think he is broke, he had a night in with his girlfriend.

His Dad arranged for him to go with him on an errand early in the morning, then come back and look further into his car problems, so early night for all.  Thank goodness for peace and quiet.

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Is there any peace?

Woken early hours of the morning by my “other” son knocking on the door!!  Been out all night and looking for somewhere to crash, and his mate with him.  I gave them my bed and I showered and went to work after a couple of cups of coffee.

I have been seriously thinking throughout the day, that a weekend out at my husbands place might be a quiet option.

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Positive vs Some Negativity

Firstly, my son got his blood tests done today, and also went voluntarily to his DEN (Disability Employment Network) appointment.  I took this as a huge positive step.  But as he was cooking dinner, I don’t know what came over him, but he spaked out!!  Throwing things, yelling and then silence.  I saw it as totally childish behaviour which lasted about 40 minutes.  The mood swing reverted back to the nice boy I want to see more of.  Needless to say, there was no dinner, which I might add isn’t uncommon here.  Tiredness is again taking over.

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Success!!

As usual in my working life, yet another event full day.  I got the cable to take the files off my sons HD, so I did that in the background while I was working leaving a copy on my work PC.  I thought I would jump the gun and reformat his drive, but notice a repair tag on the drop down menu.  What the heck, I had nothing to lose, but if it works it would save me a lot of setting up with a reinstall.  I ran it and it took about 3 hours!!  I don’t know what it did but I put it straight into his laptop when I got home and BINGO it worked perfectly.  I was so relieved, as I was contemplating hours of work in front of me. I ran a full virus check and created a restore point.  He is on it and I am not hearing any complaints, so must be fine. Whew!!  I am extremely tired so heading to bed.

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Life’s small problems

Thank goodness the day is over.  Huge day at work, as I was by myself and days never go how you plan.  Start off with big intentions and end up only achieving a small amount or sometimes ending up with even more than you started with, but at least left field problems solved.  For the time being.

Talking about problems, one laptop still down.  I sourced the SATA to USB cable, but can’t get it until tomorrow.  I also had to drive a friend back out to his property this afternoon.  I really don’t mind at all, actually I enjoy his company.  He is an elderly gentleman with a big heart and has always put others first.  But his health is starting to get him down.  I help out where I can, but he always seems to be helping me twice fold in return.

Finally I got back after dark, and my son seems OK. He even had dinner cooked, but he didn’t wait for me as when he is hungry he is hungry!!  But unbeknown to him, I have been watching him like a hawk for any telltale signs of Wegener’s returning.  In the last flare he had, well it was month in hospital ICU & HDU involving stroke, major gastro surgery and nero surgery.  His life was on razor’s edge all that time. So I am glad to say that so far, so good.

His priority at the moment is getting his computer fixed.

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Sunday Sunday – isn’t that a song?

Just another day, but one I didn’t have to go to work on.  Mind you I could work it and get a few things caught up. BUT no one is going to pay me.  I don’t love my job that much.

I actually did zilch today.  Is that a real word?  Who cares.  Drank heaps of coffee and did a fair bit of reading around the Internet.  My son’s computer had a meltdown.  So no idea what caused it, I tried everything, definitely something corrupt on his HD.  I put the Vista operating system HD in and it works fine.  But of course grindingly slow.. arrrrghhhhh  he is not impressed as it is no use to him as he on-line games.  So he hit the Xbox and sleeps.  Seems to be doing a fair amount of sleeping lately, but he did have a late night or should I say late morning 🙂  I will try and borrow a USB to SATA connection tomorrow so I can take his files, photos and music off the HD before reformatting and installing windows xp again.  He is lost without it, but that is the best I can do.

I didn’t do that ironing either, so there is always tomorrow.  I have a big day lined up work wise, appointments and some phone calls.  Breathes deeply – One day at a time!

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A Visitor!!

Amazing, this morning I had a visitor.  She is the wife of the fellow who towed my son’s car the other day.  She rang and asked to come round for coffee.  Of course I was here doing nothing so I was pleased for the company.  Our kids all grew up together, and they have been lucky that everything in life has worked out well for them.  But it was good to have some company for an hour and talk about things.  She is looking for a fulltime job, goodness knows what for, they really don’t need the money, but boredom is setting in with all her family moveing out.  One overseas, the other relocated to Brisbane with a great job, and the other in his 3rd year apprenticship and causing no problems, she hardly knows he lives there.  Her husband now works shift work so I guess she has too much time on her hands.  I would swap her in an instant.

After she left I had a real pang of lonliness, but I soon got over it.  After my son sleeping most of the afternoon, he went out again, on foot, I guess he is meeting someone at the club.  I am looking at the ironing, maybe I will go to bed and do it in the morning.  Decisions, decisions.

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Car lending

Two days without a car and relying on my son to get me to and pick me up from work!!  That in itself is a worry.  I had no option to lend him my car.  He dosen’t have a good track record at looking after vehicles.  The only thing I own is my car, nothing special just a Falcon Sedan that everything works in, air conditioning, cruise control and feels good and safe to drive.  I bought it in January for $7000.  It is not too bad on fuel, but I don’t drive around too much, only where I have to go, appointments and work.  So far, touch wood, my car is still OK.  He takes it out to my husbands property trying to fix his car.  He has spent all the money he has on spark plugs and new leads, but it still doesn’t run properly.  I am useless when it comes to fixing cars, so we are currently waiting to earn so more money so we can pay for someone to look at it.  But he has to pay his fine first, so it could be a few weeks before his car is fixed, at the best.  In the meantime I am prepared to walk to work if I have to.  It is about 5 klms, so it might actually make me fit!  We don’t have any public transport here, as the city is too small, and most people just use their cars.

It is Friday night and my son has gone out with friends, they go to a pub where it doesn’t cost to get in and they have like a nightclub there.  The drinks are expensive, that is how they sucker them in, but I don’t know how he always manages to have a few drinks, sometimes more than a few.  Mind you, we live close to the CBD and his friends stay here when they walk back, so it is probably a payback system.  Not that I approve of some of his friends though.  They are all young and sometimes a bit over the top.  But he knows that they use him, so I think he is using them back.

Weekend tomorrow, and as usual I have nothing on the books.  Not that I really plan to or not to, I actually don’t look too far ahead as things change so much.  Boring.  But the truth.

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Coming to grips with it all

Yesterday my son and I ventured down to Brisbane for multi-appointments.  This was the first time it had been 3 months between appointments.  On the way from the airport we dropped by Imaging Department for his booked chest x-ray.  Done and then booked into Ronald McDonald House. Yes our Brisbane home, at least we know where we are going and it is within the hospital grounds, so no concern about transport either. Having caught the early flight, he went straight to bed as he had a few hours before we had to be at the first appointment.

The day went downhill from there.  First Renal – results of testing done the week before – seems his kidney function had gone from 70% to 50%, Creatinine Level is 5. This doctor said that he had proved that at least the medication did work, but to stop taking it was not an option, and advised strongly to take it.  Realising that he feels OK now, but he already has damage and is trying to prevent anymore.  We do not want to have to go down the track of dialysis.  Prevention is the best policy.  I know that but my son thinks he is Superman, as he has beaten the odds.

Next appointment: Thoracic.. he saw his main managing doctor after a full breathing test.  The breathing has decreased, so he was advised to go back on his Ventolin, as with it gives him a bit more lung capacity.  But the crunch came that rocked him, and me.  The words I had been dreading.  The ANCA is active.  Meaning that Wegener’s is active again.  But the reading is low, but we are all aware how quick and hard it can hit.  My son was all ears then, what are we going to do.  He is currently well, for him, but his doctors have not made an appointment for the next followup, he has requested that he has another round of blood tests in one week, then the following week he should get the results and depending on the results, meet with his consulting team and decide what to do.  In the meantime contact him if anything is not right.  I will add he has starting taking his medication immediately after those appointments.  (This is the nightmare I wished would never happen)  Hopefully, nothing drastic happens.

We flew home today are now back home and getting back to normal.  Next week I will arrange what appointments are needed.  This afternoon, his car broke down.  I arranged for a friends husband to tow it back to his fathers place, but as usual it will probably take money to fix.  It never rains in this family – it pours!!

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Done and Dusted

Why do I wake up early on a Sunday?  Is it because I have resigned myself to a no go day?

It seemed I did nothing, well nothing much and next thing I know it is getting dark.  Day over.  Actually I was thinking how this coming week was going to pan out.  A trip to Brisbane with my son for his consultants check ups.  He hasn’t taken medication for nearly 2 months now, and at times he is extremely irratable so I am a bit anxious about it.  They will have his results of blood and urine tests.  No use worry about it, it won’t help, but I can’t help it.. as a mother, that is my job.

Weekend is now done and dusted.

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